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Fitness Options
Paul Barrett
#1 Posted : Thursday, July 25, 2013 4:43:05 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/24/2013
Posts: 703
Location: Hexham
Over the last 6 months while my disease has been active I have seen muscle tone waste away and (courtesy of the steroids) my weight increase.

I have been on Azathioprine for a month now and my appetite has definitely reduced so I hop that will allow me to shed some weight. I think it is also staring to have a tiny effect on the disease in that pain is not as diffuse as it was (although it is still painful enough in the core areas (hips, feet, hands)). I am still plagued by fatigue. Just today I walked the dog and helped with the housework (light dusting duties only) and had to sleep - forced myself up after an hour and half but could have stayed in bed a lot longer.

I walk the dog daily but it's a chore when it used to be a pleasure. I have an exercise cycle (one of the ones with a reclined seat position). I don't swim and hate gyms. We live on a very steep hill so light walks are a drive away.

Any suggestions on how to build up fitness, or is it too soon to be thinking about this - should I be concentrating on felling better first? I sense it's a complex issue and that felling fitter will help me feel better. But I also feel too tired to exercise.

Is there a cycle I need to break here? I am seeing my GP next week to discuss. Is this is topic that Rheumy nurses can or should advise on? Sorry for so many questions.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Rebecca D
#2 Posted : Thursday, July 25, 2013 5:22:38 PM Quote
Rank: Advanced Member

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Joined: 12/4/2009
Posts: 242
No Paul it's not too soon to be thinking about building up your exercise but you need to go steady so you don't over do it. Have you been assessed by a physiotherapist? You can get a referral by your GP, a good physiotherapist should put together a light programme of exercises to suit your capability, which will use all your muscle groups.

I am only able to do a short core of exercises sat in the chair at the moment but it all helps to improve strength and mobility in the muscles and joints. Exercise will not only help improve your fitness, but it helps with fatigue, mood, sleep, stress levels. I recently completed the Expert Patient programme online and that really taught me how to manage an exercise programme and to build on it. The key is to break down the exercises into short periods and never push yourself beyond your limits. In the past I found I always did too much and got exhausted and lost motivation quickly.

Gentle walking and using your exercise bike is ideal, just find a level that isn't too exhausting, even if it's only 5 minutes. You can always do another five minutes later in the day. Keeping an exercise log is very motivating too, you can see how your fitness is improving.

Best of luck.
Rebecca
jeanb
#3 Posted : Friday, July 26, 2013 9:22:27 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hi Paul

Know what you mean about exercise! You say you don't swim but just getting into the water and walking around is very good for joins. As you know, the water supports the joints, so aquarobics, or your own form of water based exercise is good. I love to swim, but our gym doesn't have a hoist, and I can only just walk let alone climb or descend pool steps! The local leisure centre is good though. Can you ask your GP for some hydrotherapy, or is there a pool locally? The warmth plus the water is wonderful but does tire you out!
Let us k ow how you get on-I'm always trying to her fit!

Take care

Jean
Paul Barrett
#4 Posted : Saturday, July 27, 2013 11:49:14 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/24/2013
Posts: 703
Location: Hexham
Thanks both.

In the meantime my back has intruded. Lower back pain and muscle spasm which has put a limit on what exercise I can do. My physio has given me some exercises to try to open up the joints but has said no to anything that causes pain. She also gave me a wonderful massage to relax the muscles in spasm.

This back pain was inevitable. The Rheumy consultants have been asking me whether I get it for some time now and have been a bit mystified that I didin't
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
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