Over the last 6 months while my disease has been active I have seen muscle tone waste away and (courtesy of the steroids) my weight increase.
I have been on Azathioprine for a month now and my appetite has definitely reduced so I hop that will allow me to shed some weight. I think it is also staring to have a tiny effect on the disease in that pain is not as diffuse as it was (although it is still painful enough in the core areas (hips, feet, hands)). I am still plagued by fatigue. Just today I walked the dog and helped with the housework (light dusting duties only) and had to sleep - forced myself up after an hour and half but could have stayed in bed a lot longer.
I walk the dog daily but it's a chore when it used to be a pleasure. I have an exercise cycle (one of the ones with a reclined seat position). I don't swim and hate gyms. We live on a very steep hill so light walks are a drive away.
Any suggestions on how to build up fitness, or is it too soon to be thinking about this - should I be concentrating on felling better first? I sense it's a complex issue and that felling fitter will help me feel better. But I also feel too tired to exercise.
Is there a cycle I need to break here? I am seeing my GP next week to discuss. Is this is topic that Rheumy nurses can or should advise on? Sorry for so many questions.
Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)